Tag Archives: autoimmune diseases

Partial Pelvic Mesh Removal — Wrong Solution to Permanent Problem

Your surgeon says he or she can snip the part of the mesh sling they can see, a quick operation and you’ll be better. Or says he can cut it to release it because it was put in too tight. Or, he promises a full removal but the operation takes less than an hour and, if the parts go to pathology, most of the mesh is still not accounted for.

Women who knowingly or unknowingly have partial removal surgery come to regret it. They issue strong warnings for the lucky women who read or search for answers online before signing up for a partial removal. Thousands of Urogynecologists and Urologists do partial removals. The very people who profit from mesh tell those specialists how to handle complaints: just cut a little out. Some heartless doctors cut it right there in the office with no anesthesia whatsoever.

The woman who have been through this tell newcomers not to allow a surgeon to cut bits and pieces of mesh but to leave it whole for a qualified surgeon with the skills to necessary to remove the entire device in one operation. They warn that doctors are not telling the truth about those partial surgeries.

Frayed rope is like sliced mesh

Partial removal can be a temporary solution to a permanent problem. Nearly everyone gets temporary relief after a partial surgery. When a rope breaks, the ends fray. That’s what happens with partials. All the ends leak toxic chemicals, stirring up a immune storm inside your body and spring back, eventually attaching to other parts of your vagina, bladder, intestines, bones, nerves, and blood vessels. After a year or two, you develop new symptoms and go looking for a doctor who can help. More than 99% of board certified surgeons will do another partial. Some women have dozens of surgeries before finding help from advocacy groups.

Be very careful. Get the whole thing out in any way you can because you are in the best possible shape to have a good outcome when your surgeon goes after the whole thing and it’s still intact! When mesh is cut, the next surgeon must go searching for shreds of it. They compare that surgery to trying to get bubble gum out of hair or searching for shrapnel.

POLY IS FOR CUTTERS

If your surgery took less than four hours, consider that it may not be a complete removal, get your medical and surgical records and your pathology report. Learn the dimensions of your implant and ask for an accounting for every piece of it. Before your explant surgery, demand a micro and macro pathology be done. Afterward, get those reports!

We’ve found only five surgeons in the U.S. who consistently prove they removed complete pelvic mesh including arms or anchors (fixation devices):

  • Shlomo Raz, UCLA
  • Dionysis Veronikis, St. Louis, MO
  • Una Lee, Seattle WA
  • Dmitriy Nikolavsky, Syracuse, NY
  • Michael Hibner, Phoenix, AZ

The surgery is very risky but research has shown that is in no more risky that partial removals.

Beware of sugeons loan companies Beware of Mesh News
If you’d like to join an online support group and learn about erosion, partial removals, surgeons, or just find out that you are not alone, check the list of support groups here.
PelvicMeshOwnersGuide.com to learn more about pelvic mesh. I’d like to hear from you if you are helped by what you read here or if you need to know more about any particular topic. Comment below or email me privately at daywriter1@gmail.com.





Why Not Talk About Hernia Mesh?

I often hear that people think that there is too much attention paid to pelvic mesh victims at the cost to the hernia victims. After all, it’s the same material that is used, just cut in a different shape and placed in a different part of the body. And, truth is, pelvic organ prolapse is very similar to a hernia —both are caused by a weakening of muscles.

When I planned this blog, I decided to focus on one type of mesh because it is the one I know best and because I planned to go into depth with my research. In the back of my mind, I want to do another blog called the Hernia Mesh Owner’s Guide —some day.

POLY IS FOR CUTTERS

I hope hernia sufferers will look at the parts of this blog that apply to them because so many complications are the same: the denial by doctors, the nerve injuries, the salesmen in the operating room, the body’s foreign body reaction and the resulting autoimmune diseases, the cancer risk, the pain, loss of consortium, and the loss of ability to work. The great difficulties getting it removed are similar. Mesh shreds, twists, curls, folds, stretches, migrates, disintegrates, etc. no matter where it is placed.

In looking at why the two entities got separated in the first place, it is important to look at the history of several legal battles. Hernia mesh underwent similar legal attacks about 20 years ago. Many versions of hernia were removed, recalled, and quietly taken off the market. Many people sued and won and many lost. In the end, really, the makers won. They just changed a few elements of hernia mesh, paid for scientific studies that proved it was a great product, and went right on marketing it (the same thing is happening with transvaginal mesh).

So, when the makers found a new application for mesh, putting it into women’s most private, most valued and most delicate place, it cause NEW problems because of the anatomy of the pelvis. The lawyers, like chairs on a tipping ship, rushed to represent this new disaster and abandoned the hernia meshes because there is no longer any money in those cases.

Hernia mesh victims: please be aware that not a single victim made this separation; it was done by lawyers.

Sadly, there are probably no lawyers who represent hernia mesh victims unless it involves malpractice and even that is very hard to prove. BigPharma and the AMA put legislation in place long ago to limit the amount you can win. (Tort reform only benefits those entities). BigPharma also controls much of major media. Thank goodness for social media!

 

Peggy Day is working on a book to combine all these stories. She welcomes any input you may have.

If you’d like to join an online support group and learn about erosion, partial removals, surgeons, or just find out that you are not alone, check the list of support groups here.

Subscribe to PelvicMeshOwnersGuide.com to learn more about pelvic mesh. I’d like to hear from you if you are helped by what you read here or if you need to know more about any particular topic. Comment below or email me privately at daywriter1@gmail.com.




26 Pelvic Mesh Complications Your Doc Never Mentioned

Welcome to the Pelvic Mesh Owner’s Guide! This page is like a Table of Contents.

Over 4.2 million women have the implants and a quarter to a third of them suffer debilitating complications while doctors say, “It’s not the mesh.” The FDA warned in both 2008 and 2011 that complications are serious. Too many women are finding out they were right all along, it is the mesh. 

If you’re having trouble with mesh, here is a list of 26 complications in the Pelvic Mesh Owner’s Guide. Sign up for updates to learn more and take the first step on your healing journey.

POLY IS FOR CABLES copy

26 Mesh Complications Your Doctor Never Warned You About:

1) Intractable Pain (pain that doesn’t go away) – Some people wake up from implant surgery knowing something is wrong. It is too tight or the pain is beyond measuring. Part 1 talks about the post operative pain from pelvic mesh & Part 2 is one woman’s journey with pelvic mesh pain.

2) Excessive BleedingBleeding happens but when is it too much? When to call the doctor? How to regain strength after heavy bleeding

3) Urinary tract infection, Kidney infection – Urinary tract infections are serious health-risks and can involve the bladder and kidney. When mesh is stuck in the bladder it continually irritates the bladder until it is removed surgically. Learn how to prevent UTIs and test yourself at home and to distinguish a bladder infection from a kidney infection.

     4) Wound infectionsA bladder sling can act like a petri dish harboring and incubating strong, sometimes drug-resistant bacteria. Left undiagnosed, they can lead to a delay in wound healing, even open up wide and deep surgical wounds and putting your life at risk.

5) Bladder injuryA slip of the knife, a puncture from an ice-pick like trocar, sling pulled so tight that it cuts the bladder. A bladder injury is one of the most difficult to repair. One study says it happens 10% of the time, another say 75%!

6) Bowel InjuryWhen a part of the bowel is nicked, fecal matter seeps into the interior of the body, when it the diagnosis is delayed or completely missed, patients become extremely ill.

7) Fistula (a hole between two organs) – Imagine your urine draining out of your vagina or your stool coming out. Fistula is all to common and deeply embarrassing for women.

8) Wound Opening Up After Stitches(also called dehiscence) – You think your surgery is healing and you are trying to get back on your feet and back to normal. Then your wound starts to open up. Dehiscence delays healing for a very long time.

9) Erosion – (also called exposure, extrusion or protrusion) As many as one patient in three experiences erosion from mesh. Would you agree to mesh if you were told the odds that you wouldn’t enjoy sex ever again were one in three?

10) Incontinence “I sneeze, I pee.”The odds that mesh surgery won’t cure your incontinence is the same as other surgical repairs: one in three.

11) Urinary Retention “I can’t pee right.”A mesh that is implanted too tight can slow down or stop your urine stream for about four percent of patients. Why does your surgeons “handedness” (right- or left-handed) affect your outcome?

12) Dyspareunia – pain during sexual intercourse One study found 26% of women found sex too painful after mesh surgery.

13) Multiple surgeriesWhen things go wrong, often the solution is another surgery and another. Some women have had over a dozen surgeries to correct mesh complications. More surgery = more scarring.

14) Vaginal scarring/shrinkage – Vaginal scarring: one of the most emotionally and physically difficult problems to heal.

15) Emotional DamageNaturally, an injury to a woman’s re-creative center causes emotional pain but can we allow doctors to blame the women?

16) Neuro-muscular problems – nerve damageStinging, burning, pins-and-needles, numbness all are signs of nerve damage. Even the way your body was positioned during surgery can cause nerve damage.

17) Obturator Nerve – Symptoms in your mid-thighs (saddle region).

18) Ilioinguinal/iliohypogastric Nerve – Symptoms in your pubic region.

19) Genitofemoral Nerve – Symptoms in your inner groin.

20) Femoral Nerve – Symptoms in your outer thighs

21) Pudendal Nerve Entrapment – Symptoms in your “sit spot.”

22) Fibular Neuropathy – Symptoms on the outside lower legs

23) Saphenous Nerve – Symptoms on your inner lower legs

24) Piriformis Syndrome – Symptoms across your buttocks.

25) Sciatica – Symptoms all the way down your leg.

26) Peripheral Neuropathy – Symptoms from the bottom of your feet and up your legs, even your hands can be involved.

MESH IS NOT FOR BODIES 2


If you’d like to join an online support group and learn about erosion, partial removals, surgeons, or just find out that you are not alone, check the list of support groups here.

Subscribe to PelvicMeshOwnersGuide.com to learn more about pelvic mesh. I’d like to hear from you if you are helped by what you read here or if you need to know more about any particular topic. Comment below or email me privately at daywriter1@gmail.com.

Burning Feet – Another Mesh Trouble

Some people express some surprise that even nurses have fallen for the doctor’s explanation that they should have a pelvic mesh implant, thinking that nurses would have done more diligent research. Nurses were trained to believe that all of the drugs and all of the devices they used had been carefully studied and approved. (Note: none of it was ever approved, it was “cleared.”) In most cases, only after being injured themselves, do they begin to do the careful research. One such nurse wrote this about peripheral neuropathy:

 “I have found that neuropathy is fairly common with mesh patients. Yes, the vagina is considered contaminated, so the surgery is considered ‘clean contaminated’ surgery. The real problem is that these implants should have never been implanted in a contaminated area.
“I kept telling my neurologist that my pelvis and feet and legs are connected. I can go into detail about why my theory we develop neuropathy makes sense to me.
“My theory is that all the nerves in the pelvis—part of the sacral nerves and L4-5 from the sciatic nerve (are involved). Because of severe inflammation, and foreign body response and mesh pulling on the nerves, we develop neuropathy. The gynecologist I am seeing here in Charlotte confirmed what I thought: that the pain we have from the pudendal nerve and the neuropathy in our feet and legs are related.
“The caudal epidurals stopped the pain and tingling, I can have another in August, I still feel some low level tinging and burning, but nothing like it was. The nurses told me they are treating other mesh patients with the same symptoms I have.
NervousSystem PERIPHERAL NEUROPATHY SHADING
Peripheral neuropathy is nerve damage to the nerves to your arms, hands, legs and feet—your periphery. The pain can be felt as tingling, burning, or feeling like you are wearing a stocking or glove. Some say ‘pins and needles,” others that their feet are on fire. More than a hundred types of peripheral neuropathy have been identified. Today’s blog is an overview—look for more about this soon from Mesh Troubles. Peripheral neuropathy (PN) after mesh surgery can be related to many causes.

Here are just some things that cause peripheral neuropathy:

•    Vitamin deficiencies
⁃    Alcoholism
•    Hormonal deficiencies
•    Autoimmune diseases
⁃    Diabetes mellitis
⁃    Lupus
⁃    Rheumatoid arthritis
⁃    Guillain-Barre syndrome
•    Compression above area with symptoms
•    Exposure to poisons
⁃    Heavy metals
⁃    Medications
•    Infections
⁃    Viral or bacterial infections
⁃    Lyme Disease
⁃    Shingles
⁃    Epstein-Barr
⁃    Hep C
⁃    HIV/AIDS
•    Inherited disorders
⁃    Charcot-Marie-Tooth disease
⁃    Amyloid polyneuropathy

There are three different kinds of nerves that can be affected by PN: sensory nerves that receive sensations such as heat, pain, or touch; motor nerves that control how you muscles move; and autonomic nerves that control functions such as blood pressure, heart rate, digestion and bladder function.
Peripheral neuropathy w foot drop copy
Symptoms:
◦    Gradual onset of numbness and tingling in your feet or hands which may move upward into your legs or arms
◦    Burning pain in affect areas
◦    Sharp, jabbing or electric-like pain
◦    Areas sensitive to touch
◦    Lack of coordination
◦    Muscle weakness or paralysis (motor nerves)
◦    Bowel or bladder problems (autonomic nerves)
Peripheral neuralgia may affect one nerve or more, one area or several different areas.
Treatments: First the good news. Correcting the underlying problem may heal PN. “Peripheral nerves have the ability to regenerate axons, as long as the nerve cell itself has not died, which may lead to functional recovery over time. Correcting an underlying condition often can result in the neuropathy resolving on its own as the nerves recover or regenerate.”

Self-care including maintaining optimal weight, exercise to reduce cramps and improve muscle strength and prevent muscle wasting, a healthy diet to correct vitamin deficiencies an minimize or eliminate sugar intake, limiting alcohol and exposure to toxins and medications, treatment of injuries, stopping smoking to improve circulation, meticulous care of your feet including visualizing them frequently can improve your symptoms.

Non-steroidal anti-inflammatory medications like ibuprofen can help milder cases and narcotic medications may be effective. There are some creams or ointments like Llidocaine or Capsaicin may help.

A “TENS unit” (transcutaneous electrical nerve stimulation)  can provide pain relief for some people. The therapy involves attaching electrodes to your skin at the site of your pain or near associated nerves and then administering a gentle electrical current. TENS has been shown in some studies to help diabetic peripheral neuropathy.

MESH IS FOR plastic_mesh_for_chicken_breeding
Sometimes hand or foot braces or orthopedic shoes help reduce pain or prevent injuries. Acupuncture, massage, and herbal medications help as well. Surgically, releasing a nerve can improve compressions injuries when a single nerve is involved.

Your physician may prescribe antidepressants but we recommend caution with those types of medication because one of the most common side-effects of antidepressants is neuropathy. Recently, anti-convulsant medications have been used to control the pain but  they are fraught with side-effects that are worse than the initial problems.

The very same process that was used to clear (mind you, they never say “approve”) plastic mesh to be irretrievably placed inside your body, is the one that cleared the drugs to be prescribed for nerve pain. The list of side-effects from these drugs (here is one example) is enough to make you run for the hills, yet they are routinely prescribed for peripheral neuropathy—some of them even cause PN! It makes no sense to me. Does it to you? You are the one who has to live with long-term effects for the rest of your life. Not the doctor you saw for fifteen minutes. What you you think about it? Isn’t your life is too valuable to risk taking a medication, like Paxil, that causes you to have suicidal thoughts in the middle of struggling with the devastating consequences of synthetic surgical mesh?

If you’d like to join an online support group and learn about erosion, partial removals, surgeons, or just find out that you are not alone, check the list of support groups here.

Subscribe to MeshTroubles.com to learn more about pelvic mesh. I’d like to hear from you if you are helped by what you read here or if you need to know more about any particular topic. Comment below or email me privately at daywriter1@gmail.com.

Welcome to Mesh Troubles

Your doctor said, “It can’t be the mesh. It isn’t the mesh.” But your troubles began soon after you had mesh (bladder sling, or pelvic mesh or mini tape) implanted. You’ve been referred to pain specialists, neurologists, bowel surgeons, urologists, physical therapist, even a psychiatrist but your pain is not getting any better. That’s the trouble with mesh.

The practice of medicine has changed over my lifetime. There is no such doctor Mesh is for Butterfliesas Marcus Welby anymore. Today’s doctors are under pressure from all directions and, sometimes have forgotten that you expect them to have your best interest at heart. Inserting a pelvic sling, (TVT, TOT, etc.) is a quick procedure and a money maker for your doctor and, although the implants have been found defective and some recalled when things go terribly wrong: hobbling, crippling or even killing you, you’re told “It is not the mesh.”

Unlike Dr. Welby’s days, surgeons now get their information from salesmen, and the sale representative told your doctor the the risk from mesh implants is low. When things go wrong manufacturers, also known as “Big Pharma,” point their fingers at a defective patient or even have the temerity to blame the surgeon himself. Nobody wants to look at the truth. That was, until patients began to get together and compare notes. That’s when Mesh Troubles came to the light of day. Welcome and we hope you soon will be packing up your “troubles in your old kit bag…”