ABOUT

Pelvic Mesh Owner’s Guide is written by a health activist who is currently working with women who were injured by transvaginal mesh. She was implanted with pelvic mesh eight years ago and underwent two revisions for severe complications. She leads several support groups for the mesh-injured offering tips, support, and translating complicated medical language into ordinary English.
The author discovered her love for medical research in the dusty bowels of the Yale University Medical Library, digging out obscure data from the annals of medicine. Her experience as a Statistical Assistant gave her the skills to evaluate peer-reviewed medical studies.
As a registered nurse, she worked for twenty years in busy emergency rooms where she focused on women’s health and conducted gentle and compassionate rape crisis interviews and examinations. She learned normal and abnormal pelvic physiology as a natural childbirth educator and lay-midwife. She was a member of the California Sexual Assault Investigators Association a coordinator of the California Attorney General’s Northern California Consortium of Multidisciplinary Interview Centers.
She spent recent years volunteering as a television scriptwriter and executive producer, with two award-winning television shows, and appearing on local radio and television programs. She writes for the Pulitzer Prize-winning Point Reyes Light. Currently, she provides up-to-date information and individual help to surgical mesh victims in this blog, Pelvic Mesh Owner’s Guide, and several online support groups. Her background, abilities, and determination to help mesh injured women make her ideally suited to write Pelvis In Flames, a work in progress. Please address inquiries to daywriter1@gmail.com.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

If you’d like to join an online support group and learn about erosion, partial removals, surgeons, or just find out that you are not alone, join my group, Surgical Mesh or check the list of support groups here.

Subscribe to PelvicMeshOwnersGuide.com to learn more about pelvic mesh. I’d like to hear from you if you are helped by what you read here or if you need to know more about any particular topic. Comment below or email me privately at daywriter1@gmail.com..

twitter-iconfacebook-icon



33 responses to “ABOUT

  1. Would you please add me to your mailing list. Thank you.

  2. thank you for speaking out for us you have hit the nail on the head completely

  3. thank you for signing me up.

  4. Great blog….thanks for all the research. I will definitely keep checking back for updates. This is such a long hard road and nice to know we aren’t traveling alone. Are you mesh injured as well?

    • Hi Gina, Thank your for the compliment and encouragement. Yes, I am mesh injured. As I mentioned in my bio, I’ve traveled this road, but I don’t want this blog to be “all about me,” if you know what I mean. 😉

  5. Great blog. Keep up the good work!

  6. Tara Gillen-Howie

    Love this very informative blog, filled with much insight, and research. You’ve put a lot of time and energy into this, and it shows! I’ll be checking back more often now that I know it’s here!
    Thank you Peggy!
    Tara

  7. Hi Peggy;
    Great page! My mother is mesh-injured and is also a retired R.N. BSN. She was an ER Nurse Manager for many years.

  8. Peggy: I’ve sent your blog to family to help understand what is going on with me. Thank you so much for your work and ongoing support!

  9. I am in the UK, injured by TVT mesh in 2009 and ‘very’ little is being said here, all ‘top secret’, i have not received good follow up care for my injuries. Your articles are such an inspirational and informative read. I had anatomy/physiology education so i have studied as much as i could, and this confirms so many of my conclusions. Thank you so much now i know this is not in my mind!

  10. Your Blog has been so helpful to me as I have struggled like many to wade between the deception of our personal health. I just recently had my fifth surgery, hopefully last with the removal. I can say from the very beginning back in 2007 when this nightmare began I did very little research, as I trusted my doctor since he was the professional. I have learned so much since then and embarrassed how trusting and naïve I was. One of the things that helped me understand my pain was to see a visual diagram and read the instructions how one of the devices is implanted. It made so much sense when I could look at the picture and associate it with the nerve pain and damage I feel daily. I had to dig pretty deep in the internet to find the particular device used on me. Is there a place on your blog that has the different diagrams for all the different products and I just missed it? If not it would be so helpful if you added it. I have total of 4 different products in me and am still searching for visuals on the other 3. Thank you for all you do

    • Thank you for your kind words, Kim.
      I like the suggestion to have a section here where we can link different devices to detailed information about the devices. We’ll work on that. If you want to send me the names of your other devices privately, email: daywriter1@gmail.com. Will try to find even the lost diagrams.

  11. Sheryl Teague

    As a fellow nurse (and unfortunately a mesh sister whose career was ended due to my pelvic mesh injuries)…please add me to your site.

    • Hi Sheryl, I’m sorry that you’ve joined a large group of nurses who believed in what we were taught and that you suffer. Yes, I’ll add you. Peggy

  12. Could you add me to your email list. It’s a great page and has helped me through a lot of issues

    • I will happily add you to the mailing list. The holidays distracted me a bit and I apologize for responding so late. New Years resolution: Answer quicker!

  13. Please add me to your email list. Thank you.

  14. Could you please add me to your mailing list. Such a helpful site. I had a TOT in 2013 and was told i had obturator nerve damage, but I don’t think this is accurate now looking at your images. Will show this to my surgeon who’s removing the plastic shortly. Thank you!

  15. I am so very scared and upset in reading this. I am 6 wks post A&P with TOT repair and since about post op day 10 have suffered what I have learned significant obturator nerve pain. It is especially painful on the right side. I am a nurse of 26+yrs…and had heard to be wary of mesh…but my well respected uro/gyn told me this wasn’t “that” mesh and the only main concern would be getting the sling at the right tension. When I saw her at 3 weeks due to the pain, she told me to stay on anti-inflammatory NSAIDs…I have and it hasn’t gone away. At times makes me nauseous as it is like a knife on a stretched taught tendon. I am so afraid I have ruined myself…and scared because I don’t know what to do as a next step. Don’t know if I give it time…or if time is the enemy. Please add me to the list and if there are any pearls of wisdom- kindly cast my way. I type this with tears in my eyes and fear in my heart.

    • It seems, Elizabeth, you may have more than one injury. The knifelike feeling may be something other than pudendal damage. I am a retired nurse and understand how we think we can make better decisions and not get snookered.
      Sometimes nerve damage will settle down but it takes from 6 months to 6 years. I’d recommend trying to evaluate what makes your pain worse and what makes it better and try positioning that eases it a bit. When we are in that kind of pain, we have to give up the idea that we can return to our preoperative state but replace it with getting to places where we can handle what we’ve been given. For me, it was getting into a pool and moving my legs into positions that hurt less and just deep breathing.
      If there is a pudendal neuralgia specialist near you, why not try a visit because there are other treatments for that injury than NSAIDS.
      Consider getting rid of the implant. Then, at least, you’ll have a baseline place from which to begin healing. You’re welcome to send me an email with your location and I’ll try to help you find a removal surgeon. The sooner the better. Hugs.

  16. Please add me to your mail list. This has given me a whole lot of insite. I am also a nurse that has dealt with hernia mesh issues for the last 8 years, complete removal december 2017. I have to have another suregery this year for the damage and I am left with horrible nerve damage. I hate mesh. My mother was damaged by the vaginal mesh also. This is absolutely horrendous what mesh has done. Thank you for everything!!!

    • Thanks for your support and I’m so glad you’ve found help. So sad that both you and your mother were injured. Sending healing vibes!

Leave a Reply

Your email address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.