Just can’t help but link to this song for today’s blog: Paul Revere and the Raiders’ “Can’t Sit Down.”
If you can’t sit down, it may be more serious than just that you’ve been listening to Rock ’n Roll, it may be that you have pudendal nerve damage. That problem may be your own trouble with pelvic mesh. Sitting down is one of the most basic functions of modern day life. We sit at work, during meals, while driving, going to the movies, using our computers, even reading to our children. It can be caused by bike riding (Cyclist’s Syndrome), repeated lifting, prolonged sitting or injury during pelvic surgery. Pudendal nerve injuries are common complaints of mesh that we hear about in support groups.
The pudendal nerve innervates areas around your perineum, anus, clitoris and the muscles you sit on. The pain you feel could be burning, stabbing, aching, or a loss of sensation. It can flare up from time to time or it can come quickly and stay for good—or it can come slowly and worsen over time.
Three categories of pudendal problems are pudendal neuralgia, PN, (pain along the course of the nerve due to inflammation), pudendal neuropathy (a diseased or injured nerve), and pudendal nerve entrapment, PNE, (associated with the nerve being tied down by the surrounding tissues).
• Stinging, burning, stabbing, aching, knife-like pain, irritation, cramping, spasm, tightness, pins and needles, numbness, or hyper- sensitivity over your anal region, perineum, vulva or clitoris
• Pain that worsens while sitting and improves while standing or walking
• Lying down may or may not relieve the pain
• Pain can be in one area or several, on one or both sides.
• Problems with urination, defecation or sexual function
• Increased pain after defecating
Each person’s symptoms are unique. A pudendal nerve entrapment (PNE) diagnosis can be made by listening to the patient’s description of the problem, physical exam, with a special MRI called a MRI neurogram of the pudendal nerves, or an ultrasound.
Treatment: Medications such as custom made suppositories to relax your pelvic nerves and muscles may help. Physical therapy with gentle massage, accupuncture, pudendal nerve block guided by CT or ultrasound, caudal epidural injections, pulsed radio frequency ablation to the pudendal nerves, botox injections, spinal cord stimulation. Reference.
Peggy Day is working on a book to combine all these stories. This is an excerpt from Pelvis in Flames: Your Pelvic Mesh Owner’s Guide. Your input is welcome to help make Pelvis in Flames the book you need to read.
If you’d like to join an online support group and learn about erosion, partial removals, surgeons, or just find out that you are not alone, join my group, Surgical Mesh or check the list of support groups here.
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