Ilioinguinal-Iliohypogastric Nerve Pain: My Ilioinguinal Is Making Me Sick

Pain in the groin means you never sit down the same way again. One study  found 22% of pelvic surgery nerve injuries were in the ilioinguinal-iliohypogastric nerves. Women say they feel burning, tingling, pain and numbness on their upper thighs. Your ilioinguinal nerve branches off your L1-2 nerve roots, which is near your lower back. It branches down through your second and third abdominal muscles and communicates with your iliohypogastric nerve, whose main function is to regulate your diaphragm (the muscle that helps you breathe) and the areas around it. Your ilioinguinal nerve moves further down, eventually branching out into the upper part of your thigh muscles. It eventually reaches your mons pubis and labia majora, providing sensation to all these areas. It innervates your abdominal muscles, groin and thigh.

2 Ileohygastric nerve 2 lateral branch iliohypogastric 2 ilioinguinal iliohypogastric

An ilioinguinal nerve that is severed in abdominal surgery leads to pain in thighs and labia majora and a weakening of the local muscle fibers. In some people, the ilioinguinal nerve ends at the iliohypogastric nerve.

Signs & Symptoms
•    Pain in the groin radiating to genitals and upper medial thigh
•    Paresthesia in the groin area
•    Tenderness on palpation 2-3 cm medial and below the anterior                superior iliac spine
•    Pain or tingling with percussion over course of nerve (Tinel Sign)
•    Pain elicited with hyperextension of hip which further compresses the nerve
•    Weakness is not usually noted with impingement unless it is secondary due to discomfort.

Treatment: Rest, ice, ultrasound, anti-inflammatory and/or pain medication, local corticosteroid injections, and abdominal stretching. Surgically, the nerve could be cut leaving permanent numbness but, typicallMESH IF FOR GIFTINGy, this treatment is used only after all other alternatives have been exhausted.

Naturopaths recommend acupressure and acupuncture are other alternative modes, certain herbs such as lobelia, white sage, and valerian root, known to be effective in nerve disease.

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Peggy Day is working on a book to combine all these stories. This is an excerpt from Pelvis in Flames: Your Pelvic Mesh Owner’s Guide. Your input is welcome to help make Pelvis in Flames the book you need to read.

If you’d like to join an online support group and learn about erosion, partial removals, surgeons, or just find out that you are not alone, join my group, Surgical Mesh or check the list of support groups here.

Subscribe to PelvicMeshOwnersGuide.com to learn more about pelvic mesh. I’d like to hear from you if you are helped by what you read here or if you need to know more about any particular topic. Comment below or email me privately at daywriter1@gmail.com..

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8 responses to “Ilioinguinal-Iliohypogastric Nerve Pain: My Ilioinguinal Is Making Me Sick

  1. Pingback: You’re On My Last Nerve, Doc! – Neuromuscular Mesh Trouble | MESH TROUBLES

  2. Just had TVT surgery 30/11/17 at 8am
    by 10.30pm excruciating pain in groin/pubic area to right of incision.
    contacted surgeon who told me to take more painkiller but to come see him at 9am Friday.
    Arrived at 9am extreme pain getting ot of vehicle and following Dr into his surgery – examined and told maybe bleeding in the local that hopefully get better in a few days.
    Saturday afternoon more excruciating pain (present when moving in bed trying to go side to side – also on sitting and standing) incl leakage of wee during screams of pain.
    Dr advised trip to ER but no one available to ‘scan’ told them I can manage pain until Monday but need something done.
    Monday I tell Dr not happy with possible nerve damage/aggravation and afraid if left to wait n see – removal of mesh will cause more problems.
    Feel this is interference of the ilioinguinal nerve. I’m very disappointed to be removing this device and suffering an adverse side effect so soon.

    • Wish we could get to all women before they have to go through what you did. I’m working on my book as fast as I can to get the word out. Hopefully, you are better now. Hope you’ll update us about your progress. Peggy

    • Hi Sara, So many women describe the exact same situation. They wake up from surgery in abject pain, go for help and find none. Hope you’ve found more help by now and have found a way to deal with nerve damage. Please keep us updated. Peggy

  3. Hello, my name is Leo, and 5 years and 9 months ago I had a double inguinal hernia repair, (why it’s called a repair is beyond me!!!) But the day after the Surgery, I began to expierence horrible pain throughout my Groin area!!! I have seen so many doctors, and so many Surgeons that I’ve lost count!!! And one of them wanted to deal with me!!!! After 3 years I found one Surgeon that said he’d try to help me.. he was so upset when he read my medical records on the procedure the prior Surgeon had preformed on me, he flung my medical records across the room, and said that the Surgeon that did this to me, had totally screwed up!!! I won’t use the words that he used!!! Well he scheduled me for Surgery, and he went ahead and went in Laparoscopically and when I woke up, he said the best he could do was remove scar tissue and address some adhesions… as grateful that I am for him at least trying to help me, which is much more than what any of the other ones did!!! But I woke up the next day, with no change to my condition!!! So here I lay at 4:00 a.m. two weeks before Christmas, and still praying for a miracle!!! The pain that I have to endure everyday, is horrible!!! I can’t even get a Primary Care Physician to help me with some pain medication!!! If you have anymore information for me, that would help me, I would be eternally grateful… thank you for this Blog, I found it very helpful…

  4. I am in Tennessee, has anyone had a nerve block for the pain,I have had Physical therapy,she put a Tens on my area and it hurt so bad,I almost cried,I don’t think it is supposed to hurt.I have had the mesh for 10 years,and now removed with horrible nerve pain.I will not let this go.Please help me,my husband and I retired to have fun,so depressed.I can’t do anything without pain pills,then constipated,then laxitives,then pain pills, please any ideas,I am 68 still have not been released.Diane Turk

    • Wow, Diane, I’m so sorry your life has been turned upside-down. You’ve been down the road so long that you know most of the treatments. Have you tried valium? A composite pharmacy can make it into a suppository that you place inside your vagina that would take away the spasms that accompany pelvic floor pain. If not, a low dose of valium orally before bedtime can help in the same way.
      You’re on the right track in identifying constipationas one of teh things that stimulate more pain. I’d consider a radical diet with mostly vegetables (because the fiber moves your stool along) and cutting out things that bind you up like wheat flour and processed foods. I’m not a dietitian but would recommend you talk with one. Plan ahead when you take a pain pill and take a laxative and something like Metamucil with it.
      Also, I’ve found being in a pool, whether swimming or just floating eases the pain a bit.
      Nerve pain is a bear. Some nerves settle down after years of trying to heal themselves. How did the nerve block go? If it helped, maybe you can set up a schedule for repeat blocks with a doctor who does them well. There are a lot of docs who don’t get nerve blocks right. Then you could plan some fun with your husband for the time the block is working.Tennessee is so beautiful, I hate to think you are missing out on it.

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